Conan O’Brien, host of the popular talk show “Conan O’Brien Needs a Fan,” recently had a heartfelt conversation with Jules and Maria, a couple who are facing the challenges of living with ALS. The episode focused on how AI voice cloning is helping people with ALS regain their ability to communicate.
Jules, who was diagnosed with ALS at the age of 35, shared his experience using an eye gaze device to control a computer with his eyes. Through this device, he is able to navigate the computer and generate phrases using his AI voice. The AI voice was created by recording 300 short statements, which were then plugged into an algorithm that generated a voice that sounds like Jules.
Using this AI voice has given Jules back his ability to express himself and even work on a five-minute comedy set that he plans to perform soon. Despite the pain and challenges he faces, Jules remains positive and motivated, showcasing his talent for humor and inspiring others.
Conan praised Jules for his creativity and humor, emphasizing that even in the face of such a devastating disease, Jules continues to find joy and exercise his talent for comedy. Their conversation showcased the connection between comedy and writing, providing insight into Jules‘ determination to live life to the fullest.
During the interview, Jules also debunked some common misconceptions about ALS. He highlighted that ALS is not just a disease that affects older individuals, with many people being diagnosed at a young age. Jules also mentioned how ALS clinics sometimes approach patients as if they have already lived their lives, often overlooking their desire to continue engaging with the world.
The episode also shed light on Jules and Maria‘s relationship. The couple met at a karaoke party and instantly felt a strong connection. Their bond has remained strong as they navigate through the challenges of ALS together. They have a son named Skyler, who is trained to be cautious when meeting new people. Skyler has become a fan of Conan’s show and even imitates him after watching episodes.
Conan seized the opportunity to ask the couple about their everyday routines. Jules described his daily routine, which involves him using an aid for several hours a day while his wife takes care of him. Despite the difficulties they face, the couple finds joy in activities like bird-watching and working on their podcast, “The Couple Shift,” which they started in 2019.
Through their podcast, Maria, who left her corporate job, and Jules share their experiences and journey as a couple. Their podcast became even more meaningful when Jules was diagnosed with ALS, allowing them to support and inspire others facing similar challenges.
The conversation between Conan, Jules, and Maria was filled with humor, honesty, and inspiration. It showcased the strength of their relationship and their determination to make the most of every day. Jules‘ ability to find joy and humor in the face of adversity serves as a reminder that even in difficult times, there is always room for laughter and love.
